Letter Sent to California First Lady Maria Shriver
This is actually directed for our First Lady, Ms. Maria Shriver. I know that you have been impacted by Alzheimer's Disease. My mother, passed away in August 2007 of breast cancer. At that time, I gave up my job at Univision Television in Palm Springs, to take care of my dad, who has Alzheimer's. It has been almost 21 months since then. My father, who is a Korean War Vet, does not qualify for Medical since he earns just slightly above the amount to qualify from his federal employee retirement (he worked for 35 years at the Naval Supply Center in San Diego). Anyway, since I am NOT the spouse, but rather the adult child of an Alzheimer's patient, as a full time caregiver I do not qualify for any assistance. I have utilized all of my savings, what is left is scant.
My father and I were featured on a PBS documentary about the cost of Alzheimer's. You can see that and an extended interview with me at YouTube if you enter my name (Ric Gomez) on the YouTube Search machine. In any case, Alzheimer's is reaching epidemic proportions. Since I do not qualify for Medical, I cannot place my dad into daytime day care for seniors. The cost at almost $100.00 per day is prohibitive. Medicare does not cover it, nor does his health insurance. I am running out of options. Moreover, out of money. I keep a blog about my experiences at www.thetroublewithjesus.blogspot.com --- Since you will be speaking to the Alzheimer's Association in the coming future, I do hope that you communicate to your husband the sad realities that we all face in taking care of our parents. We need help, I myself, after 21 months of this, I need a day off.
Thank you, and know that we know that you both are trying your best.
Ric
Wednesday, March 11, 2009
Wednesday, March 4, 2009
It Is Progressing
Unfortunately, my father's symptoms of AD are increasing. I now have to assist him in more ways than before. It is more difficult for him to shower, to dress himself, to brush his teeth. I discovered that he was brushing without the toothpaste; so now I have to be there more than not, but I have to balance being there for him without being overbearing. That is a difficult task.
The one thing that still amazes me is how everyone tells me, "Oh your father looks great." "He is just getting older." "You are overreacting."
Sometimes I feel like just crying out: "Why don't you live with him and then tell me what you observe."
Look, I am very fortunate that my father is doing just great physically; he has a great sense of humor and he is a snappy dresser. Nevertheless, he has AD; which can affect his memory, his balance and his overall judgement.
AD is a terrible disease, and most people do not realize the symptoms nor just how seriously it impacts the patient as well as the family.
The one thing that still amazes me is how everyone tells me, "Oh your father looks great." "He is just getting older." "You are overreacting."
Sometimes I feel like just crying out: "Why don't you live with him and then tell me what you observe."
Look, I am very fortunate that my father is doing just great physically; he has a great sense of humor and he is a snappy dresser. Nevertheless, he has AD; which can affect his memory, his balance and his overall judgement.
AD is a terrible disease, and most people do not realize the symptoms nor just how seriously it impacts the patient as well as the family.
Monday, March 2, 2009
Tremendously Crazy Weekend
This weekend consisted of my cousin Mike's birthday party, a graveside funeral for one of my dad's longtime neighbors, visits from no less than ten family members and friends, pizza (lot's of pizza), lemons (lot's of lemons), sleepless nights, confusion, and so much more.
My dad enjoyed being at Mike's party Saturday night, his sisters and respective husbands were present and accounted for; the food was sensational, and Mike's daughter produced an outstanding video/slide show profiling Mike's life as a dad to six kids. We gave Mike a guitar for his day; not that he knows how to play the guitar, but my father does and he thought that it would make a nice gift to remind him of his godfather.
We did not attend Earl's funeral. We loved him dearly, but I do not think it appropriate to take my father to funerals and such. Funerals make him sad and at 81, I believe he has earned the right to mourn from home. Nevertheless, we took a couple of pizzas to his family last night to help explain our absence. They seemed very understanding and cool with the situation.
In regards to the visits, we had nonstop visits from different friends and family members, which always makes my dad laugh and happy inside.
At the end of the day, it makes me happy too. Although a disportunate amount of our acquaintances own lemon trees. Apparently, I deduct that from all the bags of lemons we received this weekend. Lemonade anyone?
Unfortunately, I had very little sleep for the last couple of nights. My dad's nighttime restlessness affects me very directly. Thank GOD for baby monitors; at least I can sleep in my own bedroom.
My dad enjoyed being at Mike's party Saturday night, his sisters and respective husbands were present and accounted for; the food was sensational, and Mike's daughter produced an outstanding video/slide show profiling Mike's life as a dad to six kids. We gave Mike a guitar for his day; not that he knows how to play the guitar, but my father does and he thought that it would make a nice gift to remind him of his godfather.
We did not attend Earl's funeral. We loved him dearly, but I do not think it appropriate to take my father to funerals and such. Funerals make him sad and at 81, I believe he has earned the right to mourn from home. Nevertheless, we took a couple of pizzas to his family last night to help explain our absence. They seemed very understanding and cool with the situation.
In regards to the visits, we had nonstop visits from different friends and family members, which always makes my dad laugh and happy inside.
At the end of the day, it makes me happy too. Although a disportunate amount of our acquaintances own lemon trees. Apparently, I deduct that from all the bags of lemons we received this weekend. Lemonade anyone?
Unfortunately, I had very little sleep for the last couple of nights. My dad's nighttime restlessness affects me very directly. Thank GOD for baby monitors; at least I can sleep in my own bedroom.
Wednesday, February 25, 2009
Ash Wednesday & Uncle A's Birthday
I took my pop to the eight o'clock mass this morning for Ash Wednesday. He looked very happy, dressed super-sharp and enjoying visiting with some of his friends. After receiving his ashes, we headed out to the Chinese bakery to buy a birthday cake for my uncle Alfredo (my dad's little brother) who turns 71-years-young today. Uncle Alfredo is staying at my grandmother's house; so both of them were happily surprised to receive us as we sang "Happy Birthday" to my uncle. My grandmother is 103 years young and still kicking. She actually sang "Las Mañanitas" (the Mexican birthday song) to her son with a glow of happiness throughout her face.
I left my dad there to spend some quality time with his mom and brother. Some day I will relate the story of when my grandmother and her sisters fed Pancho Villa and his troops on her family's ranch during the height of the Mexican Revolution.
But, today is the start of Lent for Catholics. Lent is a period of individual reflection whereby we are to focus on three steps: 1. Prayer, 2. Fasting, and 3. Charity. Nice steps, if you can carry them out. Yet, I think we got off to a nice and happy start.
Moreover, my grandmother, my father and, my uncle were very elated this morning. And that makes it all worth the effort.
I left my dad there to spend some quality time with his mom and brother. Some day I will relate the story of when my grandmother and her sisters fed Pancho Villa and his troops on her family's ranch during the height of the Mexican Revolution.
But, today is the start of Lent for Catholics. Lent is a period of individual reflection whereby we are to focus on three steps: 1. Prayer, 2. Fasting, and 3. Charity. Nice steps, if you can carry them out. Yet, I think we got off to a nice and happy start.
Moreover, my grandmother, my father and, my uncle were very elated this morning. And that makes it all worth the effort.
Monday, February 9, 2009
The Book of Matthew
Blessed are the poor in spirit, for theirs is the kingdom of heaven. 4) Blessed are those who mourn, for they shall be comforted. 5) Blessed are the meek, for they shall inherit the earth. 6) Blessed are those who hunger and thirst for righteousness, for they shall be satisfied. 7) Blessed are the merciful, for they shall obtain mercy. 8) Blessed are the pure in heart, for they shall see God. 9) Blessed are the peacemakers, for they shall be called sons of God. 10) Blessed are those who are persecuted for righteousness' sake, for theirs is the kingdom of heaven. 11) Blessed are you when men revile you and persecute you and utter all kinds of evil against you falsely on my account. 12) Rejoice and be glad, for your reward is great in heaven, for so men persecuted the prophets who were before you."
Thursday, February 5, 2009
George Carlin's Take on Aging
HOW TO STAY YOUNG
1. Throw out nonessential numbers. This includes age, weight and height. Let the doctor worry about them. That is why you pay him/her.
2. Keep only cheerful friends. The grouches pull you down.
3. Keep learning. Learn more about the computer, crafts, gardening, whatever. Never let the brain idle. " An idle mind is the devil's workshop." And the devil's name is Alzheimer's.
4. Enjoy the simple things.
5. Laugh often, long and loud. Laugh until you gasp for breath.
6. The tears happen. Endure, grieve, and move on. The only person who is with us our entire life, is ourselves. Be ALIVE while you are alive.
7. Surround yourself with what you love, whether it's family, pets, keepsakes, music, plants, hobbies, whatever. Your home is your refuge. 8 Cherish your health: If it is good, preserve it. If it is unstable, improve it. If it is beyond what you can improve, get help.
9. Don't take guilt trips. Take a trip to the mall, to the next county, to a foreign country, but NOT to where the guilt is.
10. Tell the people you love that you love them, at every opportunity.
AND ALWAYS REMEMBER:
Life is not measured by the number of breaths we take, but by the moments that take our breath away.
1. Throw out nonessential numbers. This includes age, weight and height. Let the doctor worry about them. That is why you pay him/her.
2. Keep only cheerful friends. The grouches pull you down.
3. Keep learning. Learn more about the computer, crafts, gardening, whatever. Never let the brain idle. " An idle mind is the devil's workshop." And the devil's name is Alzheimer's.
4. Enjoy the simple things.
5. Laugh often, long and loud. Laugh until you gasp for breath.
6. The tears happen. Endure, grieve, and move on. The only person who is with us our entire life, is ourselves. Be ALIVE while you are alive.
7. Surround yourself with what you love, whether it's family, pets, keepsakes, music, plants, hobbies, whatever. Your home is your refuge. 8 Cherish your health: If it is good, preserve it. If it is unstable, improve it. If it is beyond what you can improve, get help.
9. Don't take guilt trips. Take a trip to the mall, to the next county, to a foreign country, but NOT to where the guilt is.
10. Tell the people you love that you love them, at every opportunity.
AND ALWAYS REMEMBER:
Life is not measured by the number of breaths we take, but by the moments that take our breath away.
Wednesday, February 4, 2009
Give It Up for Jesus
We had an outstanding birthday celebration for my father yesterday at the house. He turned 81-years-young and several family members (including two of his seven sisters) joined us to eat Carnitas, salsa, birthday cake and to enjoy each other's company. It was great and my father felt very, very happy. It was a good day!
Saturday, January 17, 2009
Drinking Java May Prevent Dementia
Drink Daily Cups of Coffee to Prevent Alzheimer's Disease
Author: Wesley Roberts Category: Science 2009-01-16 10:14:22 Midlife coffee and tea drinking can decrease the risk of dementia/Alzheimer's disease (AD) later in life. This conclusion is made in a Finnish Cardiovascular Risk Factors, Aging and Dementia.
This study has been conducted at the University of Kuopio, Finland in collaboration with Karolinska Institutet, Stockholm, Sweden, and the National Public Health Institute, Helsinki, Finland. The study included participants from the survivors of population-based cohorts previously surveyed within the North Karelia Project and the FINMONICA study in 1972, 1977, 1982 or 1987 (midlife visit). After an average follow-up of 21 years, 1409 individuals (71%) aged 65 to 79 completed the re-examination in 1998. A total of 61 cases were identified as demented (48 with AD).
"We aimed to study the association between coffee and tea consumption at midlife and dementia/AD risk in late-life, because the long-term impact of caffeine on the central nervous system was still unknown, and as the pathologic processes leading to Alzheimer's disease may start decades before the clinical manifestation of the disease," says lead researcher, associate professor Miia Kivipelto, from the University of Kuopio, Finland and Karolinska Institutet, Stockholm, Sweden.
At the midlife examination, the consumption of coffee and tea was assessed with a previously validated semi-quantitative food-frequency questionnaire. Coffee drinking was categorized into three groups: 0-2 cups (low), 3-5 cups (moderate) and >5 cups (high) per day. Further, the question concerning tea consumption was dichotomized into those not drinking tea (0 cup/day) vs. those drinking tea (e1 cup/day).
The study found that coffee drinkers at midlife had lower risk for dementia and AD later in life compared to those drinking no or only little coffee. The lowest risk (65% decreased) was found among moderate coffee drinkers (drinking 3-5 cups of coffee/day). Adjustments for various confounders did not change the results. Tea drinking was relatively uncommon and was not associated with dementia/AD.
Kivipelto also notes that, "Given the large amount of coffee consumption globally, the results might have important implications for the prevention of or delaying the onset of dementia/AD. The finding needs to be confirmed by other studies, but it opens the possibility that dietary interventions could modify the risk of dementia/AD. Also, identification of mechanisms of how coffee exerts its protection against dementia/AD might help in the development of new therapies for these diseases."
Based on the report and findings at the University, it would be apparent that everyone should begin drinking their daily doses of coffee to help combat Alzheimer's disease.
Author: Wesley Roberts Category: Science 2009-01-16 10:14:22 Midlife coffee and tea drinking can decrease the risk of dementia/Alzheimer's disease (AD) later in life. This conclusion is made in a Finnish Cardiovascular Risk Factors, Aging and Dementia.
This study has been conducted at the University of Kuopio, Finland in collaboration with Karolinska Institutet, Stockholm, Sweden, and the National Public Health Institute, Helsinki, Finland. The study included participants from the survivors of population-based cohorts previously surveyed within the North Karelia Project and the FINMONICA study in 1972, 1977, 1982 or 1987 (midlife visit). After an average follow-up of 21 years, 1409 individuals (71%) aged 65 to 79 completed the re-examination in 1998. A total of 61 cases were identified as demented (48 with AD).
"We aimed to study the association between coffee and tea consumption at midlife and dementia/AD risk in late-life, because the long-term impact of caffeine on the central nervous system was still unknown, and as the pathologic processes leading to Alzheimer's disease may start decades before the clinical manifestation of the disease," says lead researcher, associate professor Miia Kivipelto, from the University of Kuopio, Finland and Karolinska Institutet, Stockholm, Sweden.
At the midlife examination, the consumption of coffee and tea was assessed with a previously validated semi-quantitative food-frequency questionnaire. Coffee drinking was categorized into three groups: 0-2 cups (low), 3-5 cups (moderate) and >5 cups (high) per day. Further, the question concerning tea consumption was dichotomized into those not drinking tea (0 cup/day) vs. those drinking tea (e1 cup/day).
The study found that coffee drinkers at midlife had lower risk for dementia and AD later in life compared to those drinking no or only little coffee. The lowest risk (65% decreased) was found among moderate coffee drinkers (drinking 3-5 cups of coffee/day). Adjustments for various confounders did not change the results. Tea drinking was relatively uncommon and was not associated with dementia/AD.
Kivipelto also notes that, "Given the large amount of coffee consumption globally, the results might have important implications for the prevention of or delaying the onset of dementia/AD. The finding needs to be confirmed by other studies, but it opens the possibility that dietary interventions could modify the risk of dementia/AD. Also, identification of mechanisms of how coffee exerts its protection against dementia/AD might help in the development of new therapies for these diseases."
Based on the report and findings at the University, it would be apparent that everyone should begin drinking their daily doses of coffee to help combat Alzheimer's disease.
Wednesday, January 14, 2009
I am Very Sorry!
I am very sorry for not posting anything since before Thanksgiving. I was in the hospital, my dad has been getting a bit worse, my daughters came for Christmas dinner and so much more to share.
Quite honestly, I just have not felt that well, at least not well enough to write on my blog. It is very difficult to be a caregiver for anyone; moreover, these past few months have been extremely difficult. I will share more later on, right now I have to make sure my pop goes to bed... later.
Quite honestly, I just have not felt that well, at least not well enough to write on my blog. It is very difficult to be a caregiver for anyone; moreover, these past few months have been extremely difficult. I will share more later on, right now I have to make sure my pop goes to bed... later.
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